Irwin Mitchell brain injury conference: The challenges facing survivors and the support available
Achieving independence after a brain injury is a deeply personal journey, unique to each individual's circumstances and challenges.
At our recent brain injury conference on 4 July, 2024, we were given an insight into what independence means from the perspectives of medical professionals, survivors and family members of those who have suffered a brain injury.
The definition of independence can differ widely among brain injury survivors, influenced by the extent of the injury, the individual's pre-injury lifestyle, and the support systems available to them.
The path to regaining independence
The path to independence can vary significantly, as it encompasses not only the physical and cognitive abilities regained but also the emotional and social adaptations individuals make.
For some, independence may mean living alone, managing daily tasks without assistance, or returning to work. For others, it might involve relearning basic activities of daily living or finding new ways to engage with their community.
The challenges brain injury survivors face
The conference was kick-started by Dr Mike Dilley, a neuropsychiatrist who talked us through some of the challenges faced when seeking independence following a brain injury. These included challenges with friends and family with a reported decline in the stability of relationships, the challenge around finances and regaining control of your own finances.
Sleep is also a major challenge that arises and the impact this can have on individuals, for example an inability to carry out day to day tasks due to fatigue. Dr Dilley also spoke about sex and intimacy and how we need to stop shying away from having these important conversations.
The key role families play in rehabilitation
The conference also highlighted the significance of family involvement in the rehabilitation process. Family members play a critical role in supporting the pursuit of independence, helping to reinforce the strategies employed during rehabilitation. This often comes at the sacrifice of their own independence.
We heard from Chris, who is the husband of an acquired brain injury survivor. Chris talked us through the difficulties he has faced in his unexpected role as full-time carer for his wife. Chris has been working hard in finding solutions that work for them both.
We heard from two acquired brain injury (ABI) survivors, Bart and Joe who courageously spoke about the challenges they have faced in their quest for independence.
Many survivors find themselves unable to work, drive, live alone, manage finances, or perform daily tasks without assistance. Both survivors demonstrated remarkable resilience as they fought to reclaim their independence.
Bart transitioned from a demanding corporate role and is now working as a barista, whilst Joe shifted away from a physically demanding career into a new role as a motivational speaker.
Despite the immense challenges, their unwavering determination led to inspiring outcomes. Joe left us with a very inspiring quote: “You can’t fail if the bar hasn’t been set yet”.
Brain injuries in children and young adults
Brain injuries also affect children and young adults. For them, independence includes having access to the necessary support to navigate education and feel heard by their teachers and peers.
Amelia and Emma, representatives from Young Experts by Experience in Acquired Brain Injury (YEBEABI) - an advisory group of the United Kingdom Acquired Brain Injury Forum. They shared their educational journeys and their ongoing efforts to raise awareness and provide essential support for survivors upon their return to school.
It was a delight to see how Amelia and Emma supported one another with their inspiring talk giving rise to tears of joy from many of the delegates.
Life doesn't have to end following a brain injury
Colin Morris, director of communications at the brain injury charity Headway gave a very informative talk highlighting the fact that life doesn't have to end following a brain injury, it just has to be re-written.
In fact, a third of brain injury survivors developed new skills following their brain injury.
Colin was joined by David who is an ABI survivor. Prior to his injury, David was a police officer. Unfortunately, he was unable to return to this role but instead he discovered a new skill in photography. David has since returned to university to expand on this skill and was even hired as the photographer for Headway’s Action for Brain Injury Week 2024 campaign, A Life Re-Written.
Achieving independence
Achieving independence following a brain injury is a multifaceted endeavour that requires patience, perseverance, and a supportive network. The conference provided valuable insights into the complexities of this process, highlighting the tailored approaches necessary to support individuals in their unique journeys towards independence. As research and rehabilitation techniques continue to evolve, there is hope for brain injury survivors to lead fulfilling lives, defined on their own terms.
You can find out more about Irwin Mitchell's expertise in supporting people following a brain injury at our dedicated brain injury claims section.
